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Work Together - DEBRA,  Association Of Rare Diseases And We  Work Together - DEBRA, Association Of Rare Diseases And We Minimize

 
 

"Work Together - DEBRA, Association of rare diseases and we"

Project of Medical College Zagreb, Croatia
 

    ASSOCIATES SCHOOLS:   1. Medical College Zagreb, Croatia
2. Medical School Bjelovar
, Croatia
 
Date:  February 06, 2013
 
Project managers:  
 
1. Kleofina Butući, dr. med (klea.butuci@gmail.com), Zdravstveno učilište Zagreb, Croatia
2. Anka Došen, vms (anka.dosen@gmail.com), Medicinska škola Bjelovar, Croatia
 
Coordinators:  
 
1. Vojislav Bošnjak, prof. (vojislav.bosnjak@skole.hr), Zdravstveno učilište Zagreb, Croatia
2. Anka Došen, vms (anka.dosen@gmail.com), Medicinska škola Bjelovar
, Croatia
 
Leader
 
Medical College Zagreb, Croatia
 
STUDENTS:  
 
1. Petra Begić,  Zdravstveno učilište Zagreb, Croatia
2. Lucija Jurčić,
Zdravstveno učilište Zagreb, Croatia
3. Tomo Balić,  Zdravstveno učilište Zagreb
, Croatia
4.

 
Target Group:  
 
The high school students who participate in the project E​​-medica.
Objectives of the project: 
 
Sensitization to the problems of the entire population of patients suffering from epidermolysis bullosa (DEBRA Association) and a series of rare, often genetic diseases (eg mucopolysaccharidoses, scleroderma, osteogenesis imperfecta, hemophilia and many others) - introduction to the problems of everyday life (often very severe, chronic patients with disabilities who need specific health care), and treatment due to lack of medicines and therapies, šrenje knowledge and horizons, breaking prejudices, both the students and the general population..
 
Tasks:  
 
Implementation of various educational lectures, talks and meetings with affected persons, and the active participation of the International Day of rare disease, Day of epidermolysis bullosa..., mutual visits schools collaborator on the project....
 
Associates:  
 
Place of implementation:  Zagreb, Bjelovar
 
Time:   
(phases) 
  
1. Celebration of rare diseases in Zagreb-visit of students from Bjelovar, February 2013th
2. Making video you and visit Bjelovar Medical School, May, 2013.
3. Creating a common presentation for Dane E-medica, September-October, 2013.
 
Expected results:
 
Acquiring new skills, increase awareness, breaking prejudices among young people and the wider (overall population).
 
Risk Factors:  Finance.

  
Students from Medical school Bjelovar visited Medical College Zagreb - 27 February 2013  Students from Medical school Bjelovar visited Medical College Zagreb - 27 February 2013 Minimize


Visiting and Exceptional Lectures within the framework of realization of the joint project
 

    On the occasion of the international Rare Disease Day ( February 27,2013.) we received a visit from prof. Anka Došen and her pupils from Medical School in Bjelovar.
   An excellent video by the pupils from Bjelovar served as an introduction to a lecture by Matija Zmazek (suffering from epidermolysis bullosa ) from the DEBRA association.
   Pupils from the School of Nursing Mlinarska also attended the lecture. A Meeting was held to determine further development of cooperation on a joint student project "DEBRA - The association of rare diseases and we".

Greetings from Zagreba!

Kleofina Butuči, dr. med
Medical College Zagreb

 


  
 Thank you for the support project E-medica: Minimize

  
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